Tuesday, October 5, 2010

Why me?

To all the parents out there who need to be the voice of their children.

At times I may write this blog in my son’s voice, because his voice should be heard. The public school system has no interest in hearing his voice, the mayor has no interest in hearing his voice, and even the public at large doesn’t try to hear him.  So at least here Perhaps someone will Hear him other than his family.

At other times I may write just to hear myself,   because the woman who I was before I started this adventure gets lost. Crowded out by the woman who is, the mom of  2 children on the spectrum, a Wife,  a Daughter, a Sister and  a friend.

My first blog is going to be Why me? Not me Donna the mom, or any of the other titles I hold.

But, why me?  Lance.  Lance is the older of my sons and more severely afflicted of the two.   Lance has been diagnosed with alphabet soup.. That is:
Dyslexia
Dysgraphia
Dyscalculia
ADD
Turrets
Autism/Asperger’s
Visual integration issues
Sensory integration issues
Speech delays
Motor delays
Emotional controll issues

Do you think this Kid is challenged enough?
Lance is 11 and very high functioning. He has been aware that he is different since he was 4. One of the first cognizant question he ever asked me was, " Why can't I be like everyone else?"  “Why am I different?"  "What is wrong with me?"

I never told my son he was different, I never pointed out that his issues were impacting the family as a whole. When he finally began to speak and he was so difficult to understand that even I had trouble. I would tell him it wasn’t his fault it was me. My ears were tired.  That I needed him to slow down,  so my ears could catch up.  We were told he would be deaf  ( Thankfully he wasn’t. But his muscles were so globally weak that even the inner ear reacted slowly and out of sync. Causing him to hear a garbled mess not clear individual words)   upon hearing that he was deaf I imidately bought a book on sign language and started teaching him so no matter what he would communicate.
We have Worked to make him feel normal, to be just like everyone else. And still He asks.
Why Me?
Why Me?
Why am I a freak?
Why can’t I read?
Why can’t I be smart like you? Or even like Robin? (Robin is my 6 year old who is fortunate and able to read but has other delays.)
I just want friends.  I don’t want to be stupid anymore. I want people to like me.  

Mom  Please make me normal.. Please I’ll be good. Please...
As if he ever did anything in his short little life to deserve punishment like this.

So how do you answer why me's like this?
How do you make a little boy like this feel comfortable in his own skin?

I don’t know, but I am trying every day. Any hints please tell me.

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